Thursday February 4th
I Pooped like a normal person!!!!
This may be TMI for some but this is blog all about bowels so there is no way around it. It is formed bit still pretty soft but it is not pure liquid!
I was so happy I literally cried I was so happy. It was about 6:30am and I ran in and even woke up my husband I was so happy I said I am normal again. I have not gone to the bathroom like that since being on prednisone and even before that in about 2 years! This is a huge accomplishment for me. I was also still on antibiotics when this happened, which the antibiotics had been giving me terrible diarrhea so this was strange that it was normal while still taking them. I just really pray this is not a fluke because I am so excited, I am so praying it is the remicade working. I have been having horrible gas and bloating which could be from my period starting soon, but I have not been able to even pass gas in a very long time without having an accident accrue so this is total progress even if it sounds so gross it is telling me something is working. I also have a lot of stomach pressure but I just feel its because my body is working in a new way that it has not been able to do in a long time. I am still going to the bathroom still pretty frequent and its hard for me to tell the difference from a gas bubble and actually needing to use the bathroom.
I called my mom and the way I sounded telling her this was like I was pregnant or something but all I did was go to the bathroom like a normal person. After that conversation my mom sent me this picture and said I am so happy you pooped!
January 29th
I had my second round of remicade on January 29th. Building up to the appointment was a little difficult this time around. The Sunday before I started to get sick with a sinus cold. On Wednesday night I had a fever of 99.5. So on Thursday I called oncology and asked them what the deal would be if I had a cold and fever. They said I had to get confirmation from my GI doctor so I called him and said its been a week since I got the cold and I don't have a fever anymore. He gave the Okay to go to my scheduled appointment. I was really glad because I did not want to hold off and get my treatment days all screwed up.
When I went to my appointment I had to wear a lovely face mask because I was still sick and they do not want to risk others getting sick. The nurse did ask if I had any infections I said no because I did not have any present. They also took my temperature and it was 98.5 so I was in the clear. The infusion was easy this time. The nurse did start the IV in my right arm again but this time the machine did not make a noise once. I also did not notice myself getting tired every time the nurse increased the dose. I was way tired this time in general though, I took my premeds of 2 Tylenol at home, so when I got to the hospital I was hooked up right away to start my treatment. I did take a nap this time for a while, there were so many more people there this time on a Friday at 2pm so my nap did not last to long I also got a weird end chair this time in a busy isle way. My husband also came and did work the whole time. I did have a new adventure of trying to go to the bathroom with my machine. It was quite the trick to unplug from the wall and lug this big thing with me to the bathroom. But at least I was not like the old man sitting next to me who had an argument with his wife about unplugging his machine to go to the bathroom the poor man thought he had to take the whole wall with him to go to the bathroom he did not know you just unplug it from the wall.
Anyway it seemed to go faster this time, we were home by 5:15pm so not to bad. I was not as tired when I got home this time but I did take a nap and I was still sore this time. Over all it was fine
Update: So Sunday after my appointment I got a terrible Ear Infection. I was put on amoxicillin. The one thing they said with this antibiotic is diarrhea so great going in the opposite direction of where I want to be. But I think going in on Friday when they asked if I had any infections I said no, but I am almost positive I had one present I just did not know about it yet. And the remicade made it 10x worse. I do remember a week before my appointment a child at my job had a double ear infection so that is most likely where I got it from. I also have to tell any doctor when treating me that I am on remicade so they can make sure I respond to other medications. Now a week later from my remicade I still have one ear blocked and a terrible cough with mucus.
So the moral of this whole thing is I officially have a terrible immune system and its only been 2 weeks of remicade and I am supposed to be on this my whole life great it better really fix my bowel problem if I have to be sick all time because that would be a double whammy with both problems. My sister did make me this awesome cake for me!
