Round 6 August 7th
This is a super late post so if I forget anything I am sorry. This round was extra fun!
I had a visitor this time well kind of. I have a cousin who was serving a church mission in Sweden and one day he realized he could not even dress himself due to some muscle loss. So he had to come home and start infusions of his own. I am not sure what kind of medication he is getting but the poor kid age 19 has to get infusions two days a week lasting 5 hours per day every two weeks. I thought I had it bad with 3 hours, I can't even imagine.
Well by some weird miracle we happened to get an appointment the same day, I was not sure if he would be gone by the time I got to my late 1:45pm appointment. But I texted his mom when I got there and they were still there will time to go. I asked to be placed in his pod but they had no room, I was placed in pod D or E, it is the last pod. It does not connect in the back to the other pods so it is super quiet and I was the only one back there, the chair was old and super uncomfortable though and the seating was strange, I did not get my own little room I was awkwardly jetting out in the middle of the room. The seating worked out great though because my cousin and his mom came over with chairs and then his friend came so we all sat in a big circle and talked to whole time it was so fun! The nurses were super nice about the whole thing and though it was fun we were having a party. Again by some miracle my cousin and my machines went off at the same exact time! He finally got to leave but I had to stay for another 1 to get observed. During that time I did fall asleep. There was a boy there again who sat across from me that I have sat next to at the last 3 appointments. He actually talked to me this time, he said it was nice to see young people in there than the old people. I had the same nurse I did last time, she was just newly pregnant last time this time she had a nice little bump. I guess she can not administer chemo drugs because they can cause birth defects, so that is why she was in the last pod and could only take the patients not on chemo. I did gain like 3 more pounds since the last time.
Also this time after that appointment I have had this consent cold. I can not seem to kick it. But this is the longest and sickest I have been since starting so its not terrible. I just feel bad at work talking to parents about how their kids are sick and they cant bring them but I sound so gross.
Also a couple days before this appointment I found out I was pregnant...but I am almost positive I had a chemical pregnancy the day I found out. At least I know I can get pregnant on Remicade. I am meeting with my doctor this week about starting fertility drugs, but I just wish my OB and GI doctor can sit in the same room and talk to me about stuff. My GI doctor told me that I needed to get myself better before trying for a baby, and I feel better and I have been trying for 2 years so I am ready to get more outside help.
My next appointment is on Friday October 7th 2 days after my bother gets home from his two year church mission, I am super excited, what are the odds I can bribe him to coming to my appointment with me this time?
Here are pictures of me and my cousin
