Tuesday, January 26, 2016

Remicade Week 0

What is remicade?
Remicade is a drug to help reduce inflammation, it is an immune suppressant drug
Given through IV infusions
Patients who do not respond to pill form medication and who do not what to be on prednisone long term find that remicade helps.
Remicade is used to help patients living with autoimmune diseases plaque psoriasis, rheumatoid arthritis, psoriatic arthritis, adult and pediatric crohn's disease, ulcerative colitis and ankylosing spondylitis.

The typical schedule for remicade treatments is
Week 0
Week 2
Week 6
And then every 6-8 weeks after for as long as you respond to the medication.

I had my first round of remicade January 15 2016
I watched a lot of YouTube videos which made me feel better about the whole thing.
I went in at 9:15am and was out around 12:30pm.
The first 3 rounds usually will take 3 hours. They start the IV drip very slow then work up to the full amount your doctor prescribes.
The nurses first gave me 2 Tylenol as a pre-drug to make sure I did not have any reactions to the medication. Then they started a simple saline drip after 30 minutes they could start my remicade. The nurse did suggest I take Tylenol at home before coming so I do not have to wait 30 minutes the next time. The nurse started my IV in the arm because it was biggest vein. I think next time I would prefer it in my hand only because every time I moved my arm an alarm would sound the machines are just sensitive.
I did notice every time they increased the dose I would feel really tired and it burned going in my vein a little. But I was completely fine. The first time was fine the nurse did say a lot of people respond to remicade but I may not start noticing changed in my symptoms for a while.
After I had my treatment I was so tired, I would describe it as running a marathon but all I did was sit in a chair for 3 hours. The next two days after I was just extremely tired and a little cranky and so hungry.



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