This week my appointment was at 2:45pm. I got off work about 2:15, this week my mom picked me up and took me we left on time but there ended up being road construction and once at the hospital no place to park. I ended up checking in 15 minutes late plus the waiting room took a minute. I was in pod D this time usually it is pod C. So I get to my chair and the nurse was SOO rude, she kept saying if you are late sometime they can not do your Remicade because it takes 3 hours and the infusion center closes at 4:30. Anyways I took my premeds of 1000mg Tylenol before so I could start my treatment right way. Then the nurse kept telling her supervisor I was late and such. (side note they can not even get mad at me they made a patient wait an hour in the waiting room because they had no chair for her to get a dressing change! ) Anyways near the end of my appointment they increased my dose to make it go faster so I was out a little after 5 which was still right on time and there were still people in the building after me. So it all worked out, I just wish the nurse would have been a bit nicer like the ones in pod C. It was nice having my mom there I did not expect her to stay but it was nice she did I get nervous when I am there. This time my IV machine had a blood pressure attached so when I went to the bathroom it was hard to maneuver because it was large. I did take a nap this time between 140 and 220 I get so tired.
After I was just so tired but I went to Chevy's with my mom which was fun! I am kind of glad David didn't go this time cause I get crabby on the way home so with my mom there I didn't have to get crabby at her.
My recovery over the weekend was rough I would say worse than the past times. When I got home I fell asleep then woke up when David came home. My legs hurt so bad and they were SO shaky I couldn't stand without being in so much pain. I just wanted some Tylenol and I had to crawl to get it. I was just so emotional and cranky I cried a lot! My stomach just hurt so bad. Saturday I had a bit more energy and Sunday was about the same I went on a long 2 hour drive and did just fine which was awesome. I am writing this on a Tuesday my IV arm hurts so bad still and its bruised up good. I have gone back to mushy poop but its not pure water liquid which is great and I am keeping my weight steady I still go to the bathroom about 4 times in the mornings but I can make it all day until late at night without going again which is awesome. I am able to go shopping after work which I haven't been able to do in a long time. My next appointment is April 22nd the nurse said it would be another 3 hours and then my 5th would be 1hr and an observation period after. Yeah moving to every 8 weeks.
I was able to give all my old Lialda pills to a cousin I just found out has UC also so that was awesome because I had so much left.
(The picture of the butterfly is what I finally finished at my week 6 appointment, it took me 3 remicades to finish it.) My mom was also a sport and took my picture, David hates doing it but I love seeing my thumbs up and happy before I get tired! My husband also snuck a cute love note in my bag for me to see!
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