Remicade Week 8

Round 4

It was another LONG day. I did not realize my treatment would be another 21/2 hour appointment, but it was..... I was in a new pod this time I think it was pod A or D. Anyways it was all male nurses running it! I got a crappy outside seat on the end with no room wall separator or curtain. Poor David was in the middle of the walk way most of the time. Its the worst seat arrangement if you want to take a nap, I was in the middle of two different pods. I found out my weight from the two months before I gained about 10 pounds which isn't horrible that means the treatments are working. Time seemed to go by SOOOO slow this time and I was tired, the whole week before my appointment at my daycare the flu was going around. I crossed my fingers and toes that I would not get sick! I did not want to reschedule my appointment. I like staying on track. I did notice my body regress a bit a couple days before my appointment and my stomach really hurt also, I had not felt that pain in a long time. My hair is still thinning and my mom noticed the color is losing its pigment she wondered if it was from the medication. During my appointment a younger guy came in and I was ease dropping he is in for the same thing I am and our treatments match up in weeks so I will see him in a couple of weeks. My next appointment is on June 17th another 8 weeks of waiting. I pretty much slept my whole treatment this time. I felt bad for David just sitting there but I love when he comes, I don't feel as nervous.

 I feel back to normal again after my last treatment. Healing after the 4 round was rough again. I was just so tired I slept a lot over the weekend. I did not go to church because I was tired and I had loose bowel movements still. I did go on a drive to the beach with my husband which ended up being terrible! I though because I was in the car resting the whole 2 hours I would be fine but my stomach hurt so bad we had to find a bathroom halfway through fast! Other than that I still have not gotten sick which is amazing because I have such a low immune system now.

So I decided to finally do it! I have wanted something with UC awareness on it since I got diagnosed. So I ordered a shirt off of ETSY. I did not think it would make it in time for my appointment but It came right before I had to leave! I even got 2 comments on it at the hospital!!!! I am so excited to wear it.  I LOVE it! I keep it a secret for the most part that I have UC but I am excited to spread some type of awareness.

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