Sunday, June 19, 2016

Remicade Week 16

Round 5


Yes I finally made it to round 5! Some interesting things to note, after my last appointment weeks later I had started getting weird heat rashes, where it gets pretty itchy and red but then goes away and 2 days before my appointment my lip swelled up which was random and out of the blue. But I didn't really tell the nurse about it. It was not making me that worried but things to think about if it happens again. My appointment only lasted 2 hours instead of 3. I took premeds at home so I could start right away this time. I was in Pod D again which I was nervous about because last time in pod D my nurse was mean! This time my nurse was pretty friendly and young. I did see the other nurse in pod C so I missed it by one space. I got a really nice seat too it was near the back in a nice quite area. The needle was the worst this time it hurt so bad and days later it still is pretty red and visible. The remicade ran for 1 hour and it went super fast. It was fun to see it go so fast because the other ones were so slow. I did fall asleep I took 3 Tylenol before my appointment so I was pretty drained. I feel like because the medication went so fast it made me so tired. After the remicade was done the nurse unhooked remicade but I still had to have the IV in and I waited for 1 hour for observation. It was quite boring. and lame that the needle was still in I don't even think she gave me the saline drip because usually I have to pee right after but I never did this time so I feel like she didn't flush this time. My husband thinks she did though. So they observe just to make sure I don't stop breathing or get rashy. Everything went great. I was pretty nauseous after though which reminded me of the first time. I did have a headache too which I usually always have. So the nurse said the next 5 appointments would be the one hour drip then one hour observation that means it will be a year until I get to just go for one hour and then be done. This is a long process. My next appointment is August 14th







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